Traumatic year for brave North Wales children
Dec 29 2008 by Kelly Fenna, Daily Post
We have been through hell...
The families of two tiny babies and a toddler battling leukaemia have spoken of a traumatic year spent in and out of hospital.
Last night the parents both of prematurely-born Alfie and Tom Herbert, and three-year-old cancer sufferer Neve Tamburrini, looked back emotionally on 12 months of anguish.
Hoping against hope for their sick childrens’ survival, they were able to be with them around the clock, thanks to Ty Croeso Dawn Elizabeth House, a six-bedded house near to the children’s ward in Ysbyty Glan Clwyd.
Mother-of two Wendy Tamburrini from Old Colwyn said the special accommodation has been a “Godsend.”
Just last month, her daughter Neve was given the all-clear after being diagnosed with leukaemia in January, but the toddler still has to undergo blocks of intense chemotherapy which makes her sick, and has to constantly be monitored by doctors.
Wendy said: “We spend a lot of time at Alder Hey in Liverpool but when Neve gets a temperature or an infection, we have to take her straight to Glan Clwyd.
“We stay at T Croeso and she knows we are there for her – it has become a home away from home.
“Neve is doing so well but is nowhere near out of the woods so it’s good to know we have the support of the facility.”
Clare Turner, mother to little Alfie, now two-and-a-half, and new-born Tom, 12 weeks, said she couldn’t have faced going back to her Llanrwst home without her babies.
Both boys were born prematurely and were kept in incubators at the hospital’s special care baby unit where they spent months fighting for their lives.
Baby Tom has only just been allowed home after spending the first 10 weeks of his life on the unit, while his parents bedded down at the Bodelwyddan facility.
Clare said: “Alfie was born eight weeks premature and weighed 4lb 7oz and when we had Tom 12 weeks ago, he was 11 weeks early weighing 3lb 8oz.
“Both boys were monitored in the baby unit because they were so small.
“Every setback meant they were in hospital for longer but now we are all home in time for Christmas.”
She added: “I never wanted to leave without my babies, I wanted to be close to them and maintain a bond.
“Not a lot of people know about T Croeso until they need it and I really can’t praise it enough.
“The staff always lend an ear and are very understanding, they even made up a bed for Alfie so we could all stay together.”
Article and image taken from the Daily Post website